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Rare Diseases Seminar

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2014

16/12/2014 - Rare Diseases Seminar

Rare diseases as platform to develop novel therapeutic strategies: the example of Fanconi anemia

Jordi Surrallés Calonge Catedràtic de Genètica de la UAB; Investigador Principal CIBERER; Professor ICREA-Acadèmia (UAB)

18/11/2014 - Rare Diseases Seminar

Cost of illness studies in rare diseases: cystic fibrosis as an example

Prof. Milan Macek Professor of Medical and Molecular Genetics Chairman of Department of Biology and Medical Genetics Division of Clinical Molecular Genetics and the National Cystic Fibrosis Centre- University Hospital Motol and 2nd School of Medicine -Charles University Prague- Czech Republic

29/10/2014 - Rare Diseases Seminar

Research infrastructures to boost R&D in the field of Rare Diseases

Ségolène Aymé Directrice de recherche émérite / Emeritus director of research Founder of Orphanet - Chair of the Topic Advisory Group on Rare Diseases at WHO Member of the European Commission Expert Group on Rare Diseases - Project leader of Support IRDiRC - Editor in chief of the Orphanet Journal of Rare Diseases PARIS - FRANCE

15/10/2014 - Rare Diseases Seminar

Malalties Minoritàries i Medicaments Orfes en l'Unió Europea: Reptes i Oportunitats per la recerca biomédica

Josep Torrent i Farnell Servei de Farmacologia Clínica, Hospital de la Santa Creu i Sant Pau.-President del Consell Assessor de Tractaments Farmacològics d’Alta Complexitat - CatSalut.-Membre del Comitè de Medicaments Orfes, Agència Europea de Medicaments (EMA- Londres)

07/10/2014 - Rare Diseases Seminar

Unidos nuestros derechos avanzan: análisis de las 14 propuestas 2014.

Juan Carrión Tudela Presidente de la Federación Española de Enfermedades Raras (FEDER)

23/09/2014 - Rare Diseases Seminar

Research, regulations and rare deseases. Is there a meeting point?

Jordi Llinares, MD MSc Head of Department-Product Development Scientific Support European Medicines Agency - London -United Kingdom

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